Aug 31, 2023·edited Sep 3, 2023Liked by Daphne Berryhill
Thank you for sharing this Daphne! Soojin's experience with her father so resonated with me as I was my father's caregiver while I hopelessly watched him whither away with no help from the medical community. He passed in 2016. In 2020 I experienced the same very familiar symptoms and had to literally fight to get a diagnosis of a hereditary disease. Then every step of the way I was prescribed incorrect medicines, one of which was a PPI. I confronted my doctor why he would prescribe such a thing when I had no stomach acid. He just looked at me, dear in the headlight. I never saw him again and thankfully I never took the PPI. Soojin is right I thoroughly research every prescription and I've become an expert on my condition. Self -advocacy is imperative as no one cares more about you than you. Soojin is my new hero!
I can resonate with this deeply. I learned a lot about the shortcomings of eldercare and the healthcare system when I was going through it with my dad. Because of the language barrier and the cultural gap, It was especially difficult trying to find place for him. That was three years ago and I'm still trying to make sense of it. Eldercare in this country is woefully lacking and so very expensive. I worry a lot about this and the future as we all grow older as a country.
Thank you for sharing this Daphne! Soojin's experience with her father so resonated with me as I was my father's caregiver while I hopelessly watched him whither away with no help from the medical community. He passed in 2016. In 2020 I experienced the same very familiar symptoms and had to literally fight to get a diagnosis of a hereditary disease. Then every step of the way I was prescribed incorrect medicines, one of which was a PPI. I confronted my doctor why he would prescribe such a thing when I had no stomach acid. He just looked at me, dear in the headlight. I never saw him again and thankfully I never took the PPI. Soojin is right I thoroughly research every prescription and I've become an expert on my condition. Self -advocacy is imperative as no one cares more about you than you. Soojin is my new hero!
Rex
I can resonate with this deeply. I learned a lot about the shortcomings of eldercare and the healthcare system when I was going through it with my dad. Because of the language barrier and the cultural gap, It was especially difficult trying to find place for him. That was three years ago and I'm still trying to make sense of it. Eldercare in this country is woefully lacking and so very expensive. I worry a lot about this and the future as we all grow older as a country.